The person at the centre
People's information, experience and priorities provide a common focus for the relationships around them.
In practice / NHS Wales
The Wales Digital
Rare Care Centre.
Connecting people, clinical teams and wider support around rare disease care.
The demonstration
See the Centre
in action.
Watch the Wales Digital Rare Care Centre demonstration to see the service and its Carecircle environment.
Carecircle patient demonstration · 5 minutes 18 seconds.Watch on YouTube
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The care model
Care that connects
with everyday life.
Rare disease needs extend across clinical care, family life and wider support. The Centre brings clinical teams, charities, patients, families and support organisations together through a common environment, extending into education, welfare and everyday life.
Support across boundaries
Professional resources and wider participation can sit within the same service environment, with appropriate roles and access.
Room to evolve
NHS Wales can develop the ecosystem as needs change, adding services, resources and participating organisations.
A Welsh model with wider potential
Wales on the
global stage.
The Centre is helping position Wales as a leader in person-centred rare disease care. Its model is attracting international interest as a way to connect services around people.
Its shared foundations offer a potential blueprint for chronic care and other complex, long-term conditions, shaped by each population and setting.
“The WDRCC demonstrates how people with rare diseases can be connected to the right support, at the right time, through a single trusted environment.”
Carecircle's role
Shared infrastructure.
A service shaped
around people.
Carecircle powers the Centre under a five-year NHS Wales agreement. Its configurable infrastructure brings together information, relationships, participation and governed workflows.
- Person-owned information. Consent and permissions govern how information is shared and used.
- Multilingual participation. Supported content and interactions help people participate in the language that works for them.
- Reusable capabilities. The same foundations can be configured for further services, populations and use cases.
News, policy and the people behind the service
The story
from Wales.
Read how NHS Wales, the Bevan Commission and Welsh Government describe the work and ambition behind the Centre.
Cardiff and Vale University Health Board / 2026
Read the NHS announcementEmpowering patients through digital care.
The NHS announcement of the Centre's HSJ Digital Awards recognition and its connections across care and everyday support.
Bevan Commission / Exemplar project
Read the Bevan project storyA model shaped with professionals and families.
The project story behind the Centre's development, peer support and transition from children's to adult services.
Welsh Government / 27 February 2026
Read the Welsh Government updateImproving care for people with rare conditions.
The national policy update includes the development of the digital Rare Care Centre and person-centred rare disease research.
Share information. Connect expertise.
Work with the Wales Digital
Rare Care Centre.
The Wales Digital Rare Care Centre is on a mission to improve the rare disease experience for people in Wales and beyond, through sharing information and collaborating across communities, services and research.
Would you like to learn more, share knowledge or explore working together?
From this service to your setting
What would connected
care mean for you?
Start with your population, your priorities
and the gaps you want to close.